Breast Cancer Gene Research and Medical Practices

Breast Cancer Gene Research and Medical Practices

by Sahra Gibbon, Jessica Mozersky, Eirini Kampriani, Galen Joseph-Hunter, Andrea zur Nieden

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About
The discovery of the two inherited susceptibility genes BRCA1 and BRCA2 in the mid-1990s created the possibility of predictive genetic testing and led to the establishment of specific medical programmes for those at high risk of developing breast cancer in the UK, US and Europe. In the intervening fifteen years, the medical institutionalisation of these knowledge-practices and accompanying medical techniques for assessing and managing risk have advanced at a rapid pace across multiple national and transnational arenas, whilst also themselves constituting a highly mobile and shifting terrain.

Discussion questions for Breast Cancer Gene Research and Medical Practices

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  1. 1

    How has the cultural perception of genetic risk, particularly regarding BRCA1 and BRCA2, shifted from the mid-1990s to the present day, and how do the authors illustrate this evolution?

  2. 2

    In what ways does the institutionalization of predictive genetic testing influence the psychological experience of individuals deemed to be at high risk for breast cancer?

  3. 3

    Considering your own relationship with modern healthcare, how do you balance the desire for preventative medical information with the potential anxiety that comes from knowing your genetic risks?

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